Stories From LTC

"Home is where we form our sense of self – the very stuff of our identity. We do so in close association with others. Home is also the material expression of self – a sort of scaffolding that holds us together. In our homes, we see ourselves reflected back – even in the small things like a flower vase or a family picture. It is quintessentially private. And yet home is also public. Our front doors beckon others in. Outside, we engage with the community – neighbours, shopkeepers, bus drivers. They are part of who we are. Living life my way and in the community is the very essence of independent living. And home is a crucial enabler for this to happen.

And home is exactly what is denied to large segments of the population......The lack of ‘home’ damages children, persons with disabilities, older persons, and others.

Institutionalization represents an extreme form of segregation – so extreme that it self-evidently amounts to unconscionable discrimination. Even if Article 19 of the UN convention on the rights of persons didn’t exist (right to live independently and be included in the community) it would have to be inferred from the prohibition on discrimination and extreme segregation."

(From: The London School of Economics and Political Science -

Crystallising the Case For Deinstitutionalization, Knapp et al, 2021)


"An institution is neither a home nor a place of care. An institution is a closed system where problems of human deprivation and indignity are quietly managed, where societal failings are hidden, and where people, individually or, as we now know, by tens of thousands, can die without

triggering alarm."

Dr. Catherine Frazee

Professor Emerita, Ryerson,

former Chief Commissioner of the

Ontario Human Rights Commission

"Without legal avenues to challenge their situation, persons with disabilities deprived of their liberty become invisible and forgotten by the wider community. Indeed, due to the mistaken belief that those practices are well intentioned and beneficial, their situation and well-being is hardly monitored by national preventive mechanisms or human rights institutions."


Office of the High Commissioner,

United Nations

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